Is Suffering a Private Matter?

This question has been on my mind a lot over the past 5 months as I make daily decisions about how much I want to share about my personal life these days. I’ve had a lot of people express interest in hearing how we’re recovering and what we’re learning along the way, but I haven’t decided to what degree I’ll share about our journey through this blog and I’m curious to hear your thoughts on this.

Obviously we all have the right to decide how much we wish to share about our own experiences and sources of suffering, so I’m not questioning whether that right should exist. And if you’re someone who keeps your suffering private, I hope you can see that I understand why and I’m not judging your choice.

But, knowing that we all have a right (and responsibility) to decide for ourselves how much we want to share and who we want to share it with when we’re going through a tough time, I’m interested in how we make those decisions – especially since the interconnected online world has such a strong leaning towards “authenticity” and “radical transparency.” Sharing intimate details about your life is easy when all is well, but it’s fraught with anxiety (for both you and the people you share with) when you’re suffering.

Grief needs to be expressed in some way – either privately or with witnesses, in order to heal.

Managing that personal/ social line in expressing our grief has been a big part of the challenge in our recovery. As much as experiences like losing your baby are a deeply personal thing, there’s no denying that it’s had a HUGE impact on our social lives. When you get pregnant, you suddenly get invited into “the parent club” and people treat you very differently. You start getting used to other people seeing you differently and you even start seeing yourself differently. And then you lose your baby and discover that the risks of a second pregnancy are greater than what you’re willing to take on, and suddenly the parent club doesn’t know what to do with you. Are you a member or not? Should you be invited to the baby shower or not? Should they ask or talk about your baby or not? Should they hide their children when you’re around or not? It’s the same with other types of loss – divorce, failed business, death of a loved one, and so on.

As we’ve negotiated that personal/ social line, we’ve had a variety of different reactions – some expected and some surprising. Sometimes we’ve shared and it’s been the most healing and connecting experience and enriched our relationship with the person we shared with. And other times we’ve realized that perhaps we over-shared and the person or relationship didn’t have the capacity to see and hear what we shared.

These experiences have got Andy and I thinking and talking a lot about whether suffering is a private matter and when it is or isn’t appropriate to let your suffering be witnessed. Being the people that we are, we’ve also chatted to a lot of our friends and family about their thoughts on this. These are the different perspectives we’ve found so far:

Some people say that suffering is a private matter because…

It’s important to avoid embarrassment and rejection by your tribe

I come from a fairly well-behaved, buttoned-up family that has a lot of social anxiety. The unspoken rule was that embarrassment is the worst emotion and you should do everything you can to make sure that you avoid embarrassment. Naturally, this trained me to keep a lot to myself – you’re safer from judgment if people don’t know what you’re thinking and feeling.

Through my work I’ve learned that this wasn’t something entirely special to my family. Everyone who’s healthy has some fears relating to being judged by other people. We’re a tribal species that’s biologically wired to be a part of a group, and therefore to be sensitive to group norms and the factors that could lead to rejection by the group.

Suffering is often linked to some sense of failure and therefore associated with judgment and shame. It’s natural for our human minds to go searching for “causes” when something goes wrong, and it’s natural to fear that people might apportion some sort of blame on you, for the thing that didn’t go well and caused people pain.

Then there’s the social norms around grieving. We’re all brought up with rules and social norms on how to handle pain. There’s the stiff-upper-lip crew, the big-boys-don’t-cry crew, the it’s-okay-to-cry… if-you’re-a-woman crew, the crying-is-okay-but-anger-is-inappropriate crew, the have-a-good-cry-and-then-move-on crew, the mourn-for-the-rest-of-your-life-to-prove-your-love crew, and so on. It’s especially tricky when, despite your upbringing, you grieve differently to your other family members or your close friends.

Probably the biggest thing that I’ve seen get people stuck in their grieving process (and cause deeper, longer-lasting pain!) is when people feel judged about the way they naturally want to grieve and then try to grieve in a way that pleases others rather than what feels natural and right for them.

But I’ve felt it too. When people know that you’ve had a major tragedy in your life, they watch you closely in their shock and awe (and fear of their own vulnerability), in much the same way that they crane their necks at motor vehicle accident scenes. You become a fascination. It’s easy to forget our uniqueness, to expect other people to feel and act the way we would, and to covertly or overtly judge the way they’re handling their grief. So I can understand why some people choose to just keep their grieving to themselves to protect themselves from being seen, judged or rejected.

It’s important to protect the parts of yourself that are most vulnerable

Andy and I recently attended a group workshop with other parents who’ve had a hard time with becoming a parent and when the subject of how we’re dealing with infertility and/or loss was brought up, everyone else said things along the lines of, “It’s a private matter. We keep it to ourselves and deal with it just the two of us,” or, “We regret telling other people about it. We’ll keep it to ourselves in future because it’s such an important and painful matter.”

From the group discussion, it appeared that their criteria for deciding what to share has something to do with: “How painful is the matter?” and “How important is the matter?” The more painful and important the matter, the more likely we’ll keep it private. Again, this makes sense. We instinctively want to protect the vulnerable parts of ourselves – especially the parts that are closest to our hearts and in most pain, but the other side is that it means that we’re avoiding sharing what’s most important to us with each other.

It’s important to protect other people from pain

In conversation with a friend recently, my friend said that he thinks it’s best not to tell other people if you’re pregnant until after the first trimester, because you want to protect them from possible disappointment.

Maybe I’m selfish, but if I’m honest, I’m more concerned about my own pain than other people’s pain – especially in a situation like this where I’m more directly affected by the sad event than they are. Or maybe I’m lucky to be surrounded by people who don’t freak out and can handle seeing us in pain.

Perhaps his greatest concern really was to protect other people from the pain of seeing him suffer, or perhaps the real concern was protecting himself from the pain of other people seeing him suffer and judging him. Or maybe both. I dunno.

But it does highlight a common thought about suffering – that pain is ugly and uncomfortable and the polite and kind thing to do with it is to keep it to yourself so that other people don’t have to be exposed to it. I think this is often the underlying motivation when we suggest to friends or family that they should go to confidential counseling, instead of just being with them and letting them share openly with us.

It’s important to take your pain to “professionals” who know how to deal with it

In the world of professional one-to-one counseling, suffering is a private matter. I’ve had a few friends and acquaintances ask me if we’re going for counseling after Juggernaut died. And Andy’s company has generously offered us paid-for counseling. We haven’t taken up any offers of formal counseling yet and I’ve told folks who ask about it that we feel like we’re getting all the “counseling” we might need through open conversations with each other and our friends and family.

Reactions to this have been interesting – probably the most common reactions have been, “But wouldn’t it be nice to be able to share with someone who’s not a part of your life and kind of anonymous?” and “But surely it’s better to get professional advice.”

Maybe it is better to take your pain to professionals. There certainly is a context for this. But as a professional who’s done a lot of grief counseling through the years, I know that there’s very little “advice-giving” when it comes to supporting someone who’s grieving, because grieving is such a unique process. The most important advice is to listen to your own needs and do it your way.

I do wonder whether the “take it to the professionals” stance is more about our fears of being judged by others, or the need to believe that there’s a professional out there who can give us the elusive answers and sense of control that we long for when we’re grieving. The irony is that you have to face the loss of the illusion of certainty and everything you thought you knew as part of your grieving process, and nobody can “give you back control,” because by definition, if they do, it’s them who are in control and not you. And I’ve always worried that “confidential” professional counseling serves to reinforce the shame and stigma that’s often associated with grieving (which is one of the reasons why I think group counseling can be a much better vehicle for healing through loss).

During grieving, it’s important to tune out external influences and tune into your own inner wisdom

As I said before, grieving is an incredibly unique process and one of the most common ways that people get stuck in their grieving is when they feel like they’re not “doing it right.” Privacy during periods of suffering decreases the amount of advice and consequent self-judgment that you’ll experience, which can make it easier to tune into your own inner wisdom and self-healing capacities. There’s a lot of research suggesting that addiction recovery rates are higher for people who do it alone than for people who attend programs and Bonanno, in his book, “The Other Side of Sadness,” highlights a surprising amount of evidence that the majority of people easily heal from major grief and trauma without professional help.

This makes a lot of sense to me. As per Martha Beck’s change model, during square 1 of change, when there’s often a lot of grieving going on, Beck recommends that we follow our natural tendency to withdraw socially, and use the opportunity to tune into our own quiet inner voice. It really helped me to relax into my own healing when I unsubscribed from all blogs/ newsletters. In doing that, and spending less time on social networks, I cut off that incoming advice and “shoulding,” and I gave myself less opportunity to compare myself to others (afterall, the picture that most people put up on Facebook, etc is only their best side, right?)

Square 2 in the change cycle, when the vision and plan for moving forward comes together, is better-suited for opening up the communication channels again so that you can receive information and advice from other people as you research and construct your new vision.

It’s important not to focus on your suffering in a public way because what you focus on grows

Then there’s the world of coaching and personal development. Many people in this world believe that what you focus on grows and that you attract what you’re thinking and talking about. What you focus on does grow, in the sense that we learn by practicing firing neural circuits and the more you practice a particular thought, the more you strengthen that circuit and create it as a habit. I also believe that our perception works in such a way that we’re always deleting some information from our awareness, because we can’t take in all the information around us consciously. What you focus on, and your core beliefs about the way the world is and what you expect to find in the world are all things that shape how we filter the information around us.

And of course, from a personal branding point of view, if you’re always talking about your grieving, you’re going to get known as “that grieving person.” Is that a personal brand you want to establish and affirm? I bought www.stillbirthisstillbirth.com with the idea that I’d possibly use it to blog about my recovery journey, but I haven’t done anything with it yet, mostly because I don’t want to brand myself as “the coach whose baby died.” Yes, that’s a very important part of who I am now, but I’m more than that.

When you share your suffering with others, they often look to empathize by affirming how you feel and by expecting you to feel pain and other negative thoughts and feelings. This is useful up to a point, but it can also serve to help you to focus on and practice the experience of suffering, which can reinforce your story and identity as someone who is suffering. Some people feel that they’ll be more able to move on and feel how they want to feel and be the person they want to be if they don’t tell other people about their suffering.

Yikes! That’s a lot of strong arguments for keeping your suffering private!

On the other hand, some people say that suffering can be more easily negotiated when it’s out in the open because:

Keeping your suffering private engenders self-judgment, shame, loneliness and pain

When we suffer in private, we’re often treating our suffering as though it’s a shameful thing. Sure, we might protect ourselves from judgment to some extent, but people may still judge you for retreating and dealing with your pain in private. And the act of actively protecting yourself from judgment usually serves to reinforce the sense of feeling judged! By making the decision to keep your pain private, you might unconsciously be affirming the idea that your pain, and the way you’re reacting to it, is not okay – that it’s a shameful thing.

Brene Brown is a vulnerability researcher and from her research in this field, she believes that shame is one of the most destructive forces in the world and that connection and sharing in a compassionate context are the medicine that transforms shame into strength and love. I’ve worked with many people who were really struggling with recovering from trauma or grief, and the most common source of stuckness is shame and the resulting loneliness that settles in. Once the shame and loneliness sets in, our resilience is greatly reduced and our hearts and minds become a haven for painful interpretations of everything that life offers us.

Sharing your suffering brings people together

I really believe that the vast majority of people want to live a life of contribution and love – that’s certainly what the evidence of our past 6 months indicates! But if we’re all keeping our suffering private, how will we know where and how we can help each other? People can only support you if they know what you’re going through.

Being real about your fears, vulnerabilities and losses makes it easier for people with similar experiences to find you, opens the door for others to help you, and increases other people’s confidence about reaching out to you when you’re going through a difficult time. All of this brings people together and builds stronger, more fulfilling relationships that will enrich your life and increase your resilience through good times and bad.

Sharing your suffering facilitates healing

My personal experience is that, more than anything else, connection and compassion heals. There’s healing that can’t take place without bringing your pain into the light, without allowing all parts of yourself to be seen and acknowledged. I’ve learned a lot of different “change techniques” and I’ve seen a lot of different people employ those “change techniques” in different ways and I honestly think that it’s not the “change techniques” that heal us. It’s the compassionate connection between two people that’s healing. The “change techniques” are often little more than something to keep our conscious minds busy while we connect, to provide a direction for our intention and to provide a convincer for our rational minds that some “procedure” has taken place and therefore change is taking place.

Usually a professional therapist would offer you this sort of healing non-judgmental relationship, but if you have the kind of people in your everyday life who are willing and able to see your pain in it’s fullness and be with you through it, my experience is that your interactions with those everyday people will offer far greater healing than any professional therapist can ever offer you.

Sharing your suffering promotes resilience – in yourself and others

When we share our suffering, we all learn more about dealing with the problem that caused our suffering. We can share ideas for problem-solving and over time we build our communal knowledge and ability to respond to a greater variety of problems and challenges.

What’s more, when we’re totally real with each other and share both the good times and the bad times, we build strong, dependable relationships and a solid support network that we can call on when the shit hits the fan.

There are more arguments for keeping your suffering private, but the benefits of sharing your suffering with empathic people are incredibly powerful! It’s scary to share about our suffering, but I don’t want to miss out on such powerful benefits and opportunities for healing!

Over to you… what’s your take? How do you decide what to share and who to share it with?

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26 Responses to Is Suffering a Private Matter?
  1. Marianne
    February 17, 2011 | 7:11 pm

    Hi Cath
    Your question is quite a complex one. For me, when my mom died, I chose how much to share based on basically two things. 1) The level/depth of the existing relationship. Whether the relationship carried the intimacy/history/depth/compassion to hold me sharing my vulnerable emotions. 2) How I felt at that precise moment.
    Between the two I would decide how much and what level of intimacy to share. If I was feeling open to the pain of grief and the other person was compassionate but not necessarily a close friend, I would share deeply because if they’re compassionate and I’m open to the feelings, then I’d be able to handle the raw emotions and they would be able to handle the raw emotions. Sometimes with very close friends, where a deep relationship exists, if I wasn’t feeling sad at that moment (I’m not ashamed to say that there were ‘normal’ or ‘happy’ days even early on) then I would share very little. I didn’t want to fake emotion or give it more hold on my life if I wasn’t feeling it at that moment. I didn’t want to wear my grief as a badge. I wanted to move with it as it peaked and ebbed at varying stages. It did feel odd sometimes to feel ‘normal’ or ‘happy’ even very soon after my mom’s passing but I don’t think my heart and mind could handle being deeply sad constantly. Especially when wallowing in grief would not have honoured my mom’s memory, what she wanted for me or brought her back.
    Your mentioning that it can be difficult when other family members grieve differently to you, I find particularly true. And on an open forum like this, I’ll keep that private. Maybe it’s a conversation for another day or a private email.
    You asked how people choose how much to share, hopefully my answer sheds light on a subject not often talked about.

  2. Jill
    February 17, 2011 | 7:43 pm

    I think one of the issues with sharing grief is the person listening – even if they are well meaning and love you – don’t always react in the way that you need them to. So if the emotion is so raw that you can’t afford to have someone react in a way that might feel X (x = judgemental, insensitive, disinterested, over-gawking, embarrassed, etc) then I think the griever has every right to maintain their privacy and share it with only the people who they know that – whatever their reaction – it will be both meant and heard as a supportive loving reaction. It’s up to the griever to decide when and how much to share.

    I think online forums are particularly difficult because there are going to be people you don’t have that rapport with, and also because you don’t get the subtleties of the body language, intonation, etc in expressing either side of the exchange.

    Fascinating post!

    • Cath
      February 17, 2011 | 8:11 pm

      Thanks for adding your thoughts, Jill! I’m totally with you – it’s always the griever’s right to decide how much they feel safe to share. It would be incredibly painful and intrusive to be asked or coerced to share more than feels safe. So thanks for reiterating that!

      With regards getting “the wrong” reactions from other people, I’m learning that, as the griever, I also have the right to tell people how I’d like them to respond and to ask for specific support.

      Again, this is risky business, because if you ask for a certain reaction and don’t get it/ they refuse, that’s another source of pain/ loss to add to your pain!

      But when I’ve done this in a gentle and respectful way, understanding that it’s unreasonable to expect everyone else to know how we’re feeling and what we need (because grieving is such a unique process), I’ve found that most people are relieved to be given clear communication about what we need. They’re wanting to support us, but because they haven’t experienced what we’ve experienced, they often don’t know what to say or do.

      Andy and I call it “educating” our friends and family, and we’ve decided that, rather than expecting everyone else to anticipate or guess our needs, it’s our responsibility to communicate our needs.

      I think this has had double-benefits: on the one hand, it’s increased the likelihood that we’ll get the responses and support we need, and on the other hand, it’s helping us to re-establish a sense of feeling in control after an experience of total loss of control (loss of control is the central reason why trauma is so traumatizing!).

      Having helped other people with recovering from trauma, grief or depression, I’ve noticed that the single thing that has helped them the most is when they start to take control of decisions again, including asking for what they need. They start to feel empowered again and that cures the sense of hopelessness and deep fear that often creates depression or leads to post-traumatic stress disorder. And that fits our experience too – communicating our experience and needs has been very empowering.

      Again, I’m careful to say that I’m not “shoulding” – grieving is a unique process and every person has the right to choose how they do it. So I’m not saying that everyone “should” take responsibility for educating their friends and family. And let’s face it, some people are not educatable!!!

      Just saying that this has helped us greatly. And, while the fear of educating others and asking for what you need in this way can be HUGE, it’s helped me to got into these conversations with grace and forgiveness, recognizing that other people are human too, and probably doing the best they know how. If they don’t respond the way I’d like, who knows – maybe they have their own set of pain that they’re laboring through and have never shared with us? For the most part though, I’ve found that people have a greater capacity for love than what I had anticipated, and the support we need is forthcoming.

  3. Cath
    February 17, 2011 | 7:44 pm

    Thanks for sharing your thoughts, Marianne! I really identify with the part about not wearing your grief as a badge. With my everyday friends, this has been easier, because they see me on both good and bad days, so it’s easier for them to see and enjoy all of the nuances that I am.

    For my online presence and with relationships where we have less regular contact, it feels more tricky, and there’s greater risk of “branding yourself” in a way that limits you.

    I have both good and bad days/ moments. I’ve felt all the so-called “negative” grieving emotions, as well as a bunch of positive emotions – often with much greater intensity than what I’ve felt before (gratitude, love, relief, peace, joy). It’s hard to convey that completeness and complexity in something as one-dimensional as writing (I tried to in my first post, “Stillbirth is Still Birth”), or in monthly or less regular meetups. It’s also impossible to know who’s reading my blog, and therefore to assess their level of compassion (which I agree is really key in deciding whether/ how much to share!)

    We’ve been really lucky that, for the most part, we’re surrounded with friends and family who are genuinely compassionate, which is what’s enabled us to be more open about sharing our experiences. Even on the blog, whenever I’ve written more personal posts like this one, I get very compassionate responses and I’ve never had anyone write nasty, judgmental comments. But the fear of sharing on such an open forum is still there for me!

    And I keep thinking about the clients I’ve worked with around grief and trauma recovery and remembering how alienated, judged, shamed and alone they felt. And how relieved they were to have me listen and witness non-judgmentally and compassionately. And for those who were able to begin speaking more openly with the people in their lives – how much more quickly they seemed to heal. There are so many reasons to keep your suffering private and it takes SO much courage to share it. But when you get a compassionate response, that’s the most powerful, healing, beautiful thing.

    Big love,
    Cath

    P.S. Thanks for being a friend who’s really showed a lot of support, understanding and compassion to Andy and I – especially in this past 6 months. I hope this article conveys just how precious relationships like that (and people like you and Malcolm) are to us.

    • Kerry
      February 19, 2011 | 11:36 am

      I have found it very difficult to share how I was feeling even with those closest to me. When my parents died, they both passed away in the same year – one to a horrible, pointless accident and the other to aggressive pancreatic cancer. To say that it was a difficult year would be an understatement, but understatement (or maybe just sticking to the facts) was pretty much how I dealt with my grief. Certainly that was the face that I presented to friends, family, colleagues and anyone else who happened to know about my loss. I treated telling anyone about it like pulling off a plaster – do it quickly and it might hurt less in the long run.

      My deeper thoughts and feelings remained mostly locked away – even, I think, from myself. I didn’t feel able to talk about how I was feeling until I’d had time to feel it, if you see what I mean. That took me several years (although I did talk a little to my partner). I was surprised, after talking to a friend about how my parents’ deaths had affected me, that she had thought that I wasn’t really all that upset. I think people expect an outward show of grief (which initially there was, before I had to deal with all of the paperwork and rubbish that go along with death) and don’t necessarily know how to deal with or react to someone who isn’t grieving in a way that they expect.

      I hadn’t really considered other peoples’ reaction to my grief, but kept things to myself out of long habit and need. I didn’t understand half of what I was feeling, so verbalising it wasn’t an option.

      My need for privacy quite probably isolated me in many ways, but it also had the benefit of allowing me to feel the way I felt and learn a bit more about myself without anyone putting their own interpretation on it.

      Despite the fact that I have dealt with this particular bereavement in a very private way, I think that sharing grief can be very beneficial. How that grief is shared depends very much on the person. A friend of mine is incredibly good at recognising how she is feeling and talking about it when she is feeling it (although she would choose who she shared that with). I suspect her response to grief would be more open than mine. I would say that she is very self aware and good at articulating her immediate feelings.

      I don’t know how I will react to my own grief in future. When I have to face a bereavement again I would like to think that I will be able to use some of the lessons I’ve learned this time around. I do think that every time will be different and that I may react and grieve in different ways.

      • Cath Duncan
        February 24, 2011 | 12:21 am

        @Kerry: “I didn’t feel able to talk about how I was feeling until I’d had time to feel it, if you see what I mean… I didn’t understand half of what I was feeling, so verbalising it wasn’t an option.”

        Losing both your parents in such quick succession must have been a huge shock. And being left with all the practicalities of funerals and wills and finances and wrapping stuff up – that’s a huge load to carry on top of a broken heart. Sometimes the practicalities of our lives doesn’t leave room for us to experience our emotions, and we go into survival mode, put it out of our minds and just get on with getting on. Because we know we have to. Thank God for the amazing ways that our mind protects itself. I often seen people only really experiencing their grief when they’re ready.

        Even in my own case, it feels like I’ve had layers of realizations of the losses we’ve experienced. At first I felt like the only loss was our little Juggernaut. It didn’t seem that important to me that we could not try for another pregnancy. Later, when I was ready to grieve it, I’ve been able to feel that additional loss. And still later, I’m getting to feel my grief in relation to my own health.

        I think this is a very good point you make about verbalizing emotions – and certainly one of the reasons why someone might grieve more inwardly than outwardly. Having the words for describing my grieving experience has probably been easier for me just because of having worked in this field – I’ve collected an extensive emotional vocabulary from hearing so many other people’s experiences.

        But that’s not to say that words are a better way for expressing your grief. Some grief/ trauma experiences can be so awful that words aren’t enough to describe it. And, depending on personality and thinking style, some people might prefer expressing themselves through music or art-making or dance or other types of non-verbal expression. That can be just as effective. The only possible advantage that verbal expression has is that it makes it easier to explain to others what you’re experiencing and to ask for the support you need.

        But a disadvantage of verbal expression is that it can sometimes get you entrenched in “telling your dreadful story” so that you start to feel like it’s your identity rather than a phase you’re going through. And nonverbal expression often allows more unconscious, surprising insight and creative problem-solving to surface, because it’s a more right-brained thinking channel. Language and “rational” left-brained thinking often suppresses this by being too linear and analytical.

        Ultimately, it’s for each of us to find or make our own way through our grief. And you’re right – that might look different in future grief journeys.

        Thanks for sharing your experiences and thoughts here, Kerry.
        Cath Duncan\’s latest post…Is Suffering a Private Matter

  4. susie@newdaynewlesson
    February 17, 2011 | 8:09 pm

    I think you might be interested in reading this post by someone who has lost her husband to suicide.

    http://www.rrsahm.com/2011/02/for-record.html
    susie@newdaynewlesson\’s latest post…Blogging Is A Microcosm Of The World And Happy 1st Blogversary To Me

  5. Alison Elliot
    February 18, 2011 | 12:34 am

    Thank you so much Cath for having been so willing all these months to share the intimate details of your private life.

    It’s no accident that this post falls on the almost 10 year anniversary of my mother’s passing (my dad passed 13 months before her).

    As someone who had been in the personal development niche for over 20 years, taken 100s of private clients through their paces and been a Hospice and elder care provider, I was surprised by my reaction to my own personal proces w/death.

    What I learned following my experience with loss is that it is impossible to “share” the insight and learning derived from the experiences with such loss untill the pain has transformed into gifts of wisdom,and the experience integrated into the fabric of life.

    I know everyone is looking for the totally transparent, wildly authentic “share” from somebody who is traversing the skinny line in their own life. However, sometimes, when one can’t get there on their own, they seek to piggy back on someone elses experience – thus the request for the intimate emotional share.

    I too value authenticity. However, the need to ‘cross the line’ for the purpose of being able to empathize with someone elses pain, appears alomst goolish to me and in many ways invalid. Social media is exactly that “social”. No one dealing with the pain of loss is into being social. We tend to want to hole up, go within, seek refuge, take shelter until the fever breaks.

    What is really going on here. Are we, as Carolyn Myss states, looking for wound mates to help us shore up the emotional run off from our own impossible experience with the inconceivable.

    The situation is that until the cake is baked, it doesn’t matter how many times we open the oven door, all we see is an unbaked cake. In continuing to revisit the oven to see if if it’s done, we run the risk of so severly interrupting the flow of things that the damn thing may never rise.

    Point is – pain is not a shareable thing. We feel pain and some of us feel others pain and want to stop it or help it along or “share” it to make the load lighter. Truth is everyone has to engage their own willingss to ‘feel’ their own pain.

    What we share comes later after we work through the pain. Until our cake is baked we can’t deliver slices.

    I ended up writing a book about my journey through the process of dealing with my pain regarding loss. The experience changed me in a way that nothing else in my life even came close to being able to do.

    However, I was not able to talk about that experience in this way 10 years ago. Ten years ago I was living thru the grueling experience of loss and dealing wiht my pain. My cake was not baked.

    It takes time to integrate the experience of loss. As we integrate the loss, the pain subsides and we become the reciepient of many gifts. That’s what we get to share.

    Don’t worry, you will know when your cake is baked and ready for sharing. Untill then it’s wise to take cover.
    Alison Elliot\’s latest post…Sitting Still – Developing A Contemplative Practice

    • Cath Duncan
      February 18, 2011 | 5:38 pm

      Alison – wow, thank you for your comment. I know that “social media” is meant to be just “social” and is typically thought to be quite superficial (compared to real-life interactions, it is superficial), but I love that we have right here an example of people having REAL conversations, sharing well-thought-out reflections, and sharing deeply! Thank you for being a part of this.

      I get your baked cake analogy. I think grief/ trauma recovery is largely a process of making meaning – exploring and reflecting until you find a story/ set of stories that feels okay and brings you to that place of acceptance that Kubler-Ross talks about.

      I don’t think I’ve reached that place of having a neat story/ sense of meaning. Some days I find myself feeling peace and acceptance and other days I’m still appalled at the loss of our little girl and all the dreams we had for her, and the shitty health I’m left with after it all. I’m well aware that my cake is “half-baked.” I’ve also been surprised to find that the loss has turned almost everything in my life upside down and my whole life feels “half-baked” right now (ie. messy, lacking in clarity, direction, purpose and meaning)

      So yeah… we’ve got a half-baked cake on our hands.

      Now, if you’ll forgive me for the horrendous mixed-metaphor I’m going to employ… but reading your comment, I kept thinking “bun in the oven” when you referred to half-baked cake. I couldn’t help but wonder if not sharing your story/ experience is similar to not telling anyone you’re pregnant until your baby is born – just in case things never get to the “fully-baked,” joyful cake that everyone wants and would so enjoy.

      I prefer fully baked cakes. And I prefer full-term, healthy babies. They both give me great joy – as does the experience of witnessing someone tell their story once they’ve come to a place where they’ve created or found significant meaning and acceptance after a terrible loss or trauma. I love that. But that’s not what I’ve got right now, and I have no certainty that I’ll ever have it (okay, I can probably organize some cake, but the rest… who knows?)

      I worry that other people are uncomfortable and disappointed, and even made to feel afraid, when they confront half-baked cakes (here I’m referring to both stillbirth and the more metaphorical situation of someone being in the messy middle of creating meaning that may or may not ever become something “complete.”)

      As a “coach” and “therapist,” I feel great pressure to somehow be superhuman and present a fully-baked cake – the neat little lessons and 7-step processes that make people feel good.

      But I don’t have a fully baked cake. I have a messy half-baked one. And while I feel pressure to never have half-baked cakes, I know that’s completely unreasonable, and I expect that most people know that too.

      So I’m not considering trying to write articles that tell people “this is what a fully-baked cake looks like”/ “this is what I did to bake my cake, and you can do it too.” I have however considered whether it would be useful (for both me and others who read) if I wrote articles along the lines of “this is what a half-baked cake sometimes looks and feels like, so if you’re feeling this, you’re not crazy”/ “this is what I’m finding helpful as strategies to keep on keeping on, in spite of the pain of my half-baked cake.” Know what I mean?

      This is the nature of the conversations I’ve been able to have with my offline friends and family and it’s “working” there, but I do realize that the online world is different. I’m considering the options in terms of private blogs/ free membership sites, because that would allow me to know who’s reading. Also, I’m not trying to “build a personal brand” around this, so I’m not looking to have a big audience. But I think these kinds of conversations – the messy, “in process” stuff that we’re talking about here, could be valuable to both me and others.

      Finally, I totally agree with you that other people can’t “give us our baked cake,” or feel our pain for us so that we don’t have to, as much as we wish that was possible. We all have to bake our own cakes. I’m just wondering whether we might all benefit from having a bit of company while we’re doing the hard job of baking them cakes.

      Thank you for your comment – it helped me to unpack a bunch of stuff and, if I do decide to do some sort of private blogging about my half-baked journey, I am now much clearer as to the purpose, tone and boundaries of that sharing.
      Cath Duncan\’s latest post…Is Suffering a Private Matter

  6. Kellie Walker (aka YourLifeInGear)
    February 18, 2011 | 3:15 am

    I’ve been mulling this over most of today. I’m glad I waited to respond because Alison (bless her) said a lot of what I have been thinking.

    One of my first thoughts after reading your post was to recall a songwriter talking about writing songs re: personal experiences. He told the interviewer that he was never able to write a song about a powerful (positive or negative) emotional experience WHILE he was going through the experience. He needed the time and space to live the experience, process it and, as Alison noted, integrate it into who he became because of the experience.

    Other thoughts that came to be in no particular order:

    My son, CJ, would be 12 this July. I was 17 weeks pregnant when I delivered him. I wasn’t able to say his name, refer to him by name or talk about his age to any other person until last October. In large part, me getting to this point was because I came across your Stillbirth is Still Birth post. However, even though I am eternally grateful to you for being willing and able to share what you shared, I did not and do not EXPECT anything from you.

    I had only told 3 people outside of my family and my husband’s family that I was pregnant. After CJ was born, I regretted not telling others. I felt this pressure to be “ok” because I didn’t want to inconvenience anyone else with my grief. I felt like I owed it to them because “they didn’t know.” I wish I had taken better care of myself then. Perhaps it wouldn’t have taken over a decade to find a way to acknowledge, grieve and honor my son?

    My experience taught me a lot about how to help grieving friends. I stopped saying, “Let me know if I can do anything.” Instead, if I saw something that needed to be done, I did it. I left messages telling them I loved them and was thinking of them – while expecting absolutely no response.

    In my opinion, grief is an extremely individual and personal thing. No one should expect or demand anything in particular from someone who is grieving a loss. If the bereaved needs isolation and quiet time, so be it. If they need to share their story with someone strong enough to bear witness to their feelings, so be it. They are the one grieving. They are the one needing something – comfort, someone/something to rage at, someone to share their gratitude with, someone who gets that they may need to do all of these at the same time, etc.

    People are fallible, so I do not expect anyone to know how to “be” what someone else needs at all times. But, I do think it’s a shame that our current culture feels the need to label emotions as “good” and “bad”. If we accepted that emotions are simply a natural part of being human beings, they wouldn’t be so scary. And, I believe, it would be easier for people to know how to respond to a loved one who is grieving and hurting.

    I have a feeling I rambled on here, but can’t quite bring myself to go back and re-read/edit this post. I suppose I shouldn’t be too surprised since this is clearly a “hot spot” for me emotionally.

    So, I’ll leave it at this:

    Don’t worry about us. Take care of you. Take care of Andy. Take care of Juggernaut. I’ll still be here ready to bear witness to whatever you choose to share with us.

    Much love and many hugs to you and yours.

    • Cath Duncan
      February 18, 2011 | 5:52 pm

      @Kellie: So glad to see your comment here. Your compassion is what draws me to the opportunity to share my half-baked cake journey. Thank you for all the permission and acceptance. You’re right – grieving is such a personal thing and each of us needs to find the form of expression and grieving that feels right for us. And the timing that’s right for us. Because I think we often change how we want to express and grieve over time.

      “I do think it’s a shame that our current culture feels the need to label emotions as “good” and “bad”. If we accepted that emotions are simply a natural part of being human beings, they wouldn’t be so scary.” – I *so* agree. Which is one of the reasons why I think it might be valuable to share some half-baked cake with each other on occasion. Half-baked cake isn’t pretty or yummy or neat, but it’s safe and it’s a natural part of the process of getting to a fully-baked cake.

      Of course, like the songwriter you mentioned, there might be times when you feel something but just don’t have words for it. So I’m considering a combination of verbal/ written expression and nonverbal (art expression). I’ve been doing some art-making in a private journal and often I start with pictures and the words only come to me later – perhaps on the day, sometimes weeks later.

      P.S. You can come ramble on my blog anytime you like. But really, we need to schedule a Skype-ramble together :)
      Cath Duncan\’s latest post…Is Suffering a Private Matter

      • Kellie J. Walker (@YourLifeInGear)
        March 5, 2011 | 2:48 am

        Cath,

        I feel so silly because I didn’t see your response to my note until today after I followed your Tweet re: Shl. I must be totally spoiled re: expecting to get an email when someone replies to a reply.

        I also feel extremely grateful that we had our Skype-ramble today. It was wonderful to hear your lovely voice and see your lovely face. Now if we could just figure out a way to hug via Skype. :-)

        Much love to you, my friend.

        Until we ramble again…

  7. Mike Carlson
    February 19, 2011 | 1:20 am

    I don’t have en epic tale of tragedy to use to illustrate some profound point relating to your post Cath. But what I did notice (again) is how WONDERFUL it is to visit a blog where the comments have not been turned off. There was too much of that this year, and I think it kills the community and intimacy that develops around a good blog.

    My other thought, more related to the topic is, we should always be glad if we have someone to share our deepest feelings and thoughts with. Sharing is cleansing, and for me, I’ve had times where it was really painful to keep things in with nowhere to go with it.

    Mike

    • Cath Duncan
      February 24, 2011 | 12:23 am

      You’re right, Mike – community and friendship is a privilege and something I’m very grateful for. So I’ll always make space for that here at Agile Living.

      And thanks for all your short, sweet notes, Mike. You’re a good friend.
      Cath Duncan\’s latest post…Is Suffering a Private Matter

  8. Melanie Harth
    February 19, 2011 | 4:35 pm

    What a beautiful post! Thank you so much for your thoughtfulness, and your deep sharing about what are oftentimes taboo subjects. I’ve had much to grieve for in my life, beginning with incest. I’ve found that talking about it with professionals, painting about it as an artist, sharing with intimate partners, have all been necessary for my own healing.
    I also feel strongly that part of being human is to uncover the gold and jewels that can only be found in our sacred wounds. Much of my life’s work has been involved in this treasure hunt for my deeper self.
    I also feel — and this is very personal and individual — that it is part of my soul’s calling to stand and bear witness for others’ pain, and to encourage others to engage in their own healing, as each is ready and in the ways s/he is ready. Teaching by example, using my own life and its triumphs and not-so-triumphant moments, and “speaking the truth in a million voices for it is silence that kills” (St. Catherine of Siena) all become more important to me as I get older.
    Melanie Harth, the SoulDoc

    • Cath Duncan
      February 24, 2011 | 12:28 am

      @Melanie: I like your style – sort of like maintaining a diverse portfolio of grieving tools!

      Your own grief work has clearly paid off – you’ve gotten to that place where you can recognise the value in your suffering, see the role it played in creating some of the things you love most about your life and who you are, and be honestly grateful that you got to experience what you did… well, that’s the “holy grail” of grieving, isn’t it? (I proceed in faith that I too will get there!)

      And thank you for sharing that quote about silence – it’s very true!
      Cath Duncan\’s latest post…Is Suffering a Private Matter

  9. Jesse
    February 20, 2011 | 3:30 am

    Cath,

    I don’t feel qualified to comment on your post because I’ve not experienced anything close to what you and Andy have been through.

    I want to say something specifically to the possibility of you writing a blog about your experiences. DO IT!

    “It’s the compassionate connection between two people that’s healing.” This quote from your post says it all.

    My eyes fill with tears when I think of the powerful healing my kids and I experienced in the last 18 months because of being open about our situation. We shared and then we received compassion and wisdom. We found others who spoke our language. The experience came full circle when others told us that they, too, benefited from what we had shared.

    I met with resistance from family members about my choosing to be so open. Even those family members marvel at how much healing has taken place.

    The process of writing about it every day helped me sort things out. I could chart our progress, and see our missteps.

    I greatly admire your openness.
    Jesse

    • Cath Duncan
      February 24, 2011 | 12:33 am

      @Jesse: thanks for the encouragement. I’m so glad it was a good experience for you and your family to share so openly. I’m guessing that it has something to do with the tone you created when you wrote about it on your blog.

      I’ve actually never had a single “troll” come and comment and say something nasty on my blog – not even when I was writing a less personal post. But, as with Susie’s example above, there are blogs where people share about their personal experiences and strangers come out of the woodwork and post the most awful comments. So I guess this is where my fear stems from!

      Congrats on leading your family with such courage and showing your children there’s no shame in suffering out in the open!
      Cath Duncan\’s latest post…Is Suffering a Private Matter

  10. Last Link-Up Monday
    February 20, 2011 | 8:44 pm

    [...] she is using to transform her life and the lives of her readers.  You can catch up with her at http://www.agileliving.net.  If you are someone who has wrestled with processing ‘loss’ check in with Cath, her posts [...]

  11. Shl
    March 5, 2011 | 12:40 am

    I’m so sorry for your loss.
    I’ve found that suffering is transforming, universal, and binding (in the best sense) – I think it is just another word for or a different form of love.
    Children change us profoundly and irrevocably, regardless of how long they are here.

    These are three utterly unexpected gifts my daughter has given me:
    I expected sorrow and she gave me joy. She showed me that grief carves out a room in your heart so joy has a place to live.
    I expected anger and she gave me grace. Both of us, all of us, are flawed and broken but she showed me that she and I are also more than enough – worthy of being fully loved because of, not in spite of, being exactly who we are.
    I expected helplessness and she gave me faith. She had faith in me that I was strong enough to mother her. And when I had no knowledge, no understanding, and no control, she showed me that faith could still lead me forward.
    My beautiful baby girl would have been born today, Friday, March 4, 2011. Wherever you are in this world, my darling, I am so very grateful for the blessing of you.

  12. Kerri aka @kerrilw
    April 2, 2011 | 2:09 am

    Wow, I’m so sorry to hear that you went through that. I can’t even imagine the feelings that would come from it but reading your story brought it to life.

    My sister recently had a baby. About a month before her due-date, her friend – who was at the exact same stage of pregnancy – had complications where the placenta became detached. She was forced to deliver and bury the child. My sister felt almost guilty about going to the funeral that was held. Gratefully this friend already had one healthy child and eventually may try again. She was a pretty close friend of my sister so there was no question that she went to be there for her friend. My sister cried like crazy because you never know if/when something goes wrong. (And she’s always second-guessing herself anyway!)

    I struggle with revealing too much. Sometimes I’ll put an odd Facebook comment or Tweet that expresses exactly what I’m feeling in the moment. Unfortunately, I have depression and sometimes the dark feelings are so strong, I just need to get them out there and get the feedback – if that’s what people choose. I notice especially with Facebook and even at times with blogging that I lose friends over this. People say “they weren’t true friends” or whatever, but sometimes when I realize who un-friended me, I get even more upset.

    I figure people know me well enough by now that they would realize that there are times when I feel like my life is in the gutter. Many people are fortunate not to experience such lows. Many more deny that they do or treat it as contagious and as such run the other way. On the flipside, I’ve received support from the most unlikely sources on Twitter. Someone will respond with a jewel of wisdom that actually makes me stop and think.

    I also don’t want to be seen or thought of as a complainer all the time. I try to post positive things, too. I think there’s a certain vulnerability when you expose something about yourself whether it’s online or even chatting with a close friend. There’s no guarantee about the reaction.

    All that said, I thank you for sharing your story. While I will never know exactly how you feel, you articulated very well. I find understanding through writing and feel privileged that you shared that. People need to accept that life is a series of both good and not so good occurrences and that sometimes people need to get stuff off their chests or need to hear some words of wisdom to help them through something tough.

    You are a strong woman.

  13. Tera
    May 5, 2011 | 7:36 pm

    Hi Cath,

    I’m so glad I found you through Heather Platt’s site. I saw the video of your dialog with her. Thank you so much for sharing your struggles and grief. I am on a similar journey – my husband and a couple years ago accepted the fact that we will not have our own bio child.

    We both came from families that didn’t believe in going to counselors or airing secrets out and I was brought up to believe as well that you shouldn’t talk about negative things or focus on them because it just leads to self-pity and no one wants to be around you and you won’t be able to get over it if you keep talking about it. There is also this sense that telling others about it somehow puts a scarlet letter of some sort on you that tarnishes your image and you become the poster child for pity and other people become almost afraid that what you have is contagious.

    I’m 46 now (last March) and I feel the past 11 years has been all about a dream that now I have to accept will never happen. I’ve wasted a lot of time because I basically wasn’t even myself and I couldn’t do the things I wanted to do since my heart wasn’t in it and I felt like nothing will ever matter again. I was in denial for so many years just hoping it would happen. Then hope ran out but I didn’t know how to deal with that at all, so I became this frightened person. I didn’t know myself anymore. I couldn’t concentrate and I was questioning everything. I had a lot of anger, but I didn’t know that was what it was.

    It wasn’t until my friend offered a grief class at our church that I realized that I was suffering from a loss that I needed to mourn. That was about a year ago when the class came to an end, but that was just the beginning of my renewal. Because I had allowed my suffering to become chronic (since I couldn’t resolve it and didn’t know how or ask for help or admit that I needed help) my brain had become affected. The neurons in my brain had rewired themselves and it was like I couldn’t experience joy anymore. I also didn’t seem to have very much control over my emotions or my reactions/responses to what other people would say, do or express to me.

    That’s when I found out about Life Skills. And I joined a 6-month group program that met once a week for 3 hours and watched videos and did a workbook. I just graduated from the program and feel like a whole new person. I’m not completely back to myself, but I’m on my way. I just signed up for Heather’s course “Leading With Your Paint Clothes On” and I’m also wondering if I should hire you as a coach. In the program I was in, it did touch on NLP and that made so much sense to me. There’s so much more to learn and I want to keep seeking truth into this situation and continue to surrender my pain to be transformed into something life-giving.

    My husband and I have both realized that what we’ve been through is like a death. It’s a death of what we imagined since we were children and believe would become a reality when we married 14 years ago.

    I can say that I know how it feels to look into a future where there is no hope of ever having what you always dreamed about come to fruition and completion; to feel like your life ended before it ever got started; to feel fear that you will never know what it’s like to hold a part your own soul in your arms. And I’m sorry for your great loss and I’m sorry for mine and I’m sorry for all the great, irreplaceable, earth-shattering losses that humans from every corner of the planet have endured and continue to live with and I continue to seek to recreate hope in other ways so that my life can still have a purpose and my heart can still beat in peace.

    Blessings on your journey. I hope to hear from you. You can reach me directly at tera@heartminded.com

    Tera

  14. [...] Blog Post: Is suffering a private matter? [...]

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